When Mac was born, his mom never had an ultrasound, so they had no idea what was coming, they were very surprised when Mac arrived, and learned about McKays cleft. They were very fortunate to find the team they did for Mac, who were all local to Orem/Provo. This was 27 years ago, so much has changed and most of Mac's Dr's have passed away or retired; but he was actually able to get in contact with one of his surgeons that he had who has a practice in Provo.
When I left my ultrasound, and after finding out about baby H, we still had so many questions. Our ultrasound was horrible, and we left very discouraged. (A post for another day) So Mac and I thought it would be a good idea to get a hold of Dr. Clayton, to get advice and a little more direction. Dr. Clayton was McKay's plastic surgeon who closed his lips at around 10 weeks. We saw him last week and it was very very helpful to speak with him. We talked about what our next step is and at this point was he suggested that it be to get another ultrasound to really confirm, the diagnosis, and how severe. We then talked about choosing a surgeon and team who would see our baby throughout his journey from his lip up to his orthodontic work he will need in his teenage years. He gave us a couple referrals and suggested that we explore all of them before making a decision. We plan on meeting a specialist in Provo who specializes in pediatric plastic surgeries. We also plan on making a trip up to Primary Children's Hospital and meeting some Dr's up there. My next appointment is with a team that comes from St Marks Hospital, to get a special ultrasound to get a good look at our little guy :) Were feeling ok at this point, although we have our days that are harder then others.
I am 23 weeks (nope not 43 weeks like I look.) and feeling pretty good at this point! Still having all the normal pregnancy joy's. I'm getting way too hot, lots of cravings, cramps, swollen feet and hands, feeling very very large, but I'm feeling lots of movement and hiccups :)
Hahaha ash you are adorable I love you! You don't look 43 weeks at all, you look so adorable!! I love that sweet belly. That is so great you could meet with dr Clayton!! I'm always thinking about you girl. So wish I was in Utah to see you and be with you through this rough time. You and Mac are amazing parents!!! Love you ash!!
ReplyDeleteOh Angel I love your guts!! I wish you were here too! Thanks for your text messages and your friendship! Love you!
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